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Achieving justice in genomic translation: rethinking the pathway to benefit

Burke, Wylie(Edited by)Edwards, Kelly A.(Edited by)Goering, Sara(Edited by)Holland(Edited by)Trinidad, Susan Brown(Edited by)
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This book explores implicit choices made by researchers, policy makers, and funders regarding who benefits from society's investment in health research.

The authors focus specifically on genetic research and examine whether such research tends to reduce or exacerbate existing health disparities.

Using case examples to illustrate the issues, the authors trace the path of genetics research from discovery, through development and delivery, to health outcomes.

Topicsinclude breast cancer screening and treatment, autism research, pharmacogenetics, prenatal testing, newborn screening, and youth suicide prevention.

Each chapter emphasizes the societal context of genetic research and illustrates how science might change if attention were paid to the needs ofmarginalized populations.

Written by experts in genetics, health, and philosophy, this book argues that the scientific enterprise has a responsibility to respond to community needs to assure that research innovations achieve much needed health impacts.

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Product Details
Oxford University Press
0199909741 / 9780199909742
eBook (Adobe Pdf)
13/10/2011
English
212 pages
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