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Adventures in the Mainstream : Coming of Age with Down Syndrome

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Like many parents, Greg Palmer worries about his son's future.

But his son Ned's last year of high school raises concerns and anxieties for him that most parents don't experience.

Ned has Down syndrome; when high school ends for him, school is out forever.

The questions loom: What's next? How will Ned negotiate the world without the structure of school?

Will he find a rewarding job in something other than food service?

Who will help Ned manage his life when his mother and father are gone?

To help him sort out these questions, Palmer keeps a journal that is the basis for this thoughtful book.

Ned has talents and interests - in poetry, music and history - that help him make connections with other adults while Palmer merely watches from a distance.

The years of nurturing Ned's interests seem to pay off when Ned shares a favourite poem with a stranger or earns his colleagues' admiration and wins 'Employee of the Week'.

Yet parenting Ned is a balancing act; Ned also has some gaps in self-help skills, a habit of bombarding people with unsolicited accounts of his family genealogy, and difficulty discerning who his true peers are. Preparing Ned for the working world - teaching him to handle money and public transportation, and finding him a job - is a mix of ups and downs and sometimes has the author questioning his parenting style.

Palmer wisely stays out of the way when Ned is working happily in the same office and he recognises the value of good job coaching when his son is lucky enough to get it.

But it's trickier business when Ned loses money and skips the bus.

Worry over Ned's vulnerabilities leads to finally telling his son what it means to have Down syndrome and, Palmer hopes, offering him a dose of reality.

ADVENTURES IN THE MAINSTREAM will help families confront many of their hopes and fears as they try and coax a child with a disability into the adult world and toward greater independence.

Other parents will appreciate Palmer's insights and struggles, as well as his ability to enjoy his son's strengths and foibles.

This intelligent account also gives professionals a vital personal view of what families go through as they cope with their child's transition into adulthood.

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Product Details
Woodbine House Inc.,U.S.
1890627305 / 9781890627300
Paperback
01/04/2005
United States
315 pages, b/w photos
155 x 230 mm, 450 grams
General (US: Trade) Learn More